I love the nightlife, I got to boogie

 

Today is the last day of treatment 12.  I was pretty sick yesterday (not like I was vomiting or anything) just really sore stomach and uncontrollable sugars.  My sugar shot up to 300 plus after I ate lunch (chicken on rice with salsa and cheddar cheese).  I hate the idea that the chemo and the steroid are causing damage to my other organs. I suppose it is what it is.

I feel ok this morning, my face is really flushed and of course, there is the dreaded can't go that happens this week.  I get to have all the fun.

We will be heading to NYC on Monday to have some tests and meet with all the DRs around my case.  I am hoping for the laparoscopic surgery even though that doesn't sound like full tumor removal if it helps shrink them all can kill some, it extends my existence.  Maybe some of the thought process is to try and create a clean liver side so that resection becomes a possibility. 

All in all, I try to remain in good spirits, stay active, etc.  I did a lot of work yesterday and really enjoyed having a code problem to solve.  It is perplexing me, but I am learning a lot about power automate.  It has been fun.  I could have written most of what I wanted in VBA (and easier from a looping perspective), but the added ability to run it all in the background and drive it all from an MS form has been interesting.

Tiffany is taking a lot of the insurance company won't pay in stride.  There is no question in her mind that we will pay for this and get through it.  I know she is sad and scared, but she is hiding it well.  I love her so very much.  

Maeve went to Mansfield for orientation yesterday.  She seemed really excited.  Seeing her moving forward with these things is important.  I get really worried about how she can Gusty will make money once her mother and I move on.  They are both so smart, but caught up in a generation that lacks a focus on doing like the generation before did.  Always looking for get rich quick items and not understanding the level of effort and commitment it takes to learn, accomplish, and be successful.  Also, not understanding there is a lot of failure before success - it never comes easy (Tomorrow's song, It Don't Come Easy, You Know it Don't Come Easy?).

Well - time to get the day started (there is a The Call song in that one)

I love you all!

Comments

Post a Comment

Popular posts from this blog

She said, she said, "You don't know shit because you've never been there"... March 24, 2024

Image
 It's been a while since I posted (I say that every post now), but I don't seem to have the morning time I used to and I am not certain why (going to work I guess).   I have been plugging along.  Getting back to the shitty routine of work and weekends, with a mix of NJ travel.  It has been since October since I had systematic chemo and I'm on my first of at least two pump breaks.  I just had liver ablations done (6 hour procedure) and they say they got everything they could see, which tells me they have been down this path before (burn out what they can see, but the little ones are still growing).   Either way, this gives me more time, and I hope they got it all.  I have scans on May 1, so I will know somethings then.  It is all just a wait and see game; which I no longer want to play. The family is doing well (I guess).  I feel like I put everyone's life in limbo, because I kind of did.  I am going to try and get my ass in gear this summer and do stuff, but we will see
Read more

I won't dance, don't ask me... August 11, 2023

That song in not on in the background of this video, but listening to the swing albums makes me think of it.  It was so funny the time I re-wrote the lyrics to talk about Maeve not napping.  I won't nap, don't ask me...  I haven't been feeling very well.  I try not to let Tiffany know, but I have been so lightheaded and dizzy combined with some nasty insides, I just feel like things are getting worse.  It could be my body is sick of the chemo.  I hope that is what the issue is and not that I have cancer in my gut or brain. I am going to try and get some work outside done today.  I bailed on work, I just can't keep my head in the game and it isn't fair to them that I just sit here staring at a screen.  If I am not working they shouldn't pay me. Well, I am going to get busy on the day. I love you all!
Read more

March 6, 2022

Image
 Feeling a little lightheaded this morning.  Still I road the stationary bike for 20 minutes so I am keeping up my trend of getting up and stretching (yoga) and then exercising.  I have been having some pain in my chest, but I think that is just the stress of knowing that I am about 1 week away from starting chemo. The chemo they are giving me is for colorectal cancer, but is associated with prolonging life but not curing my cancer.  I am going to fight like hell to be the statistical anomaly that beats this thing.  Thank God for my family as I am not certain I would not fight as hard for myself as I will for them. It is supposed to be 67 degrees today so I am looking forward to getting outside.  It wasn't nice enough to get out yesterday and clean up the dog messes, but I will get to that earlier this morning.  It is already 40+ degrees outside so I am looking forward to having some windows open today. Squirt is currently sleeping on my right arm. He is such a baby.  I don't h
Read more