Gonna wash the dust off my soul, May 13, 2022

 

Yes there is a bunny desk chair behind me (removed from my daughter's room as she got a new chair) and my face is all red.  This is a new gift from my treatment along with a bit of neuropathy in my finger tips.  Makes typing fun - not.

So Tiffany had to spend the night in the hospital after her procedure due to some breathing issues.  I get worried that she isn't taking very good care of herself.  I need to start being more active about dinner and such.  I don't really have an appetite most evenings and she historically is more of a dinner eater.  By the time we get to dinner I am so packed up from the day that nothing sounds good.  To be honest if I wasn't stoned most evenings, I wouldn't eat.lk

I am running late today as I am taking the day off from work and so I laid in bed a little longer than normal so this will be short.  Lots to get done!

Love you all!

Comments

Post a Comment

Popular posts from this blog

Just the other night at a hometown football game... November 4, 2024

Image
  Why am I always wearing the green sweatshirt when I decide to write something?  Luck I guess. I haven't been feeling the best, but part of thinks it is the sedentary attitude I have settled into which I am going to work on today (exercise bike).  I know that I am depressed, but it is hard to get into a happy groove when your brain is just running away with all the bad things that could happen. I have promised myself that I will start writing every morning again since I can't get outside.  I need to get my UV lamp out and start sitting in front that in the morning while I write this.  I miss my morning summer walks.  The all-mighty powerful gods willing I will be doing it again this summer.  I don't know if I wrote this, but my oncologist couldn't guarantee that I would be able to travel international when I asked him about it a couple weeks ago.  I am trying to not let that settle in, but he is saying he doesn't know what the next 6 months bring...
Read more

Midnight on the water... November 20, 2024

Image
 I am glowing from the monitor light.  I wonder how bad that much light has been for my eyes over the years?  That made me laugh - like my monitor hurting my eyes is a concern right now. We leave for NYC, again, today.  I think I mentioned in yesterday's post that this will be my 3rd ablation.  So as the count goes: 2 port placements 3 ablations 2 major abdominal surgeries Colon/Liver resections Lymph node biopsies Hepatic pump placement Ileostomy and reversal The joys of liver drains 2 years and 10 months of chemo (with some breaks) - I've lost count. When I type it out like that it seems like I have been through some shit, but honestly all I feel is love.  You all have been not only supportive, but you have been my world.   I'm worried about this one.  Some of it is that I haven't felt well and the other is that if they don't get it all this time or it comes back, I don't know what the next step is as I am exhausting my treatment options....
Read more

Feelings, nothing more than feelings... November 19. 2024

Image
  I really have to get more sweatshirts.  In a couple of days we will be heading back into NYC to get my liver ablated, again.  This is the 3rd time.  3rd times a charm?  I am not sure how I feel.  I spent all day Sunday getting things done outside so I still can burst some energy out, but it leaves me exhausted.  I don't have the energy I had just a few months. I have started another blog, but public - I am not sure why I am driven to do these things.  I have always been an introvert with a need for attention I guess (it's strange, I know). Well, I don't have a lot to say this morning outside of the fact that I am beginning to realize that I spent way too much time in my life thinking about me and it is sad that it has taken me this long to realize that life is about everyone else. I love you all!
Read more